The enduring faith, hope and love exhibited by the Weatherstone family is inspiring. This is their matter of fact account of the challenges they have come through.
We have always believed the Lord doesn’t give us more than we could handle. Our two oldest boys were born with a genetic disease called Cystic Fibrosis. Even though both Jay and Ethan have the same genetic mutation causing this disease, they present polar opposite symptoms. Ethan has more of the digestive issues while Jay has more lung complications triggered by his asthma and allergies where we lived in East Tennessee.
Our move to Colorado was all part of God’s plan. Once here, the boys had to get re established with specialists. Ethan had already been diagnosed with insulin dependent CF Related Diabetes. A year later, we found out he had CF related Liver Disease. Over the next few years, Ethan’s blood work seemed to show the medication had stabilized his liver disease, but his body was depleting itself of all vitamins and nutrients. He has always been in the less than the one percentile in size.
For at least the last year and a half, we had constantly inquired of every pediatrician and specialist as to why Ethan showed extreme fatigue. No one seemed to have any answers. On Christmas Eve of 2017 while visiting with family in Tennessee, Ethan began vomiting blood. Luckily, we were close to East Tennessee Children’s Hospital in Knoxville, TN where the boys’ original specialists were. Ethan was rushed into emergency surgery to determine the cause of the bleed and band off the ruptured veins in his esophagus. While in the ICU for the next five days, they informed us that we needed to see a Liver Specialist, and one of the top pediatric hepatologists in the nation was in Denver. This too was the design of God in our move to Colorado.
Our first visit with the hepatologist became very informative regarding Ethan’s future. He was quickly qualified for the UNOS transplant list for a liver. He continues to have an esophageal scope and banding every four weeks while waiting for a transplant. Once this process began, our family needed to intercede for God’s divine intervention.
Here we are doing another fast while reading through the book of Job with the boys. We have already seen God begin to quickly move through this process and can’t wait to see what else He has in store for each of us.
Fundraising proceeds will benefit the Children’s Organ Transplant Association (COTA) COTAforTeamEthanW.com in honor of Ethan to assist with transplant-related expenses.
The Weatherstone Family: Daniel & Meredith, Ethan (15), Jay (12), & Liam (9)
Note: that website link will take you to the COTA article for team Ethan. It is filled with his personal medical information and begins with his picture.
This good news was sent to the congregation email list on May 17, 2018
We just got a report from the Weatherstones that Ethan has a liver waiting for him! We are elated that Ethan has this opportunity so suddenly, as the plan had been for him to travel to Atlanta and receive part of a relative’s liver later this summer, which would include a lengthy hospital stay far from home.
There is the humble feeling over the Weatherstone family that this gift has come because of someone else’s death, but the overarching mood is praise toward God.
Ethan is being picked up from school as this email is sent, and he, Daniel and Meredith are all heading up to Denver over the next hour or so. The liver transplant should be getting underway by midnight tonight, with the surgery lasting up to twelve hours. Ethan will stay in ICU post-surgery for a few days and then remain hospitalized for about three weeks, depending on circumstances.
Please keep Ethan in your prayers so that his body is covered with God’s presence and healing power. And please keep the rest of the family in your prayers as well. May God’s presence and peace abound over Daniel, Meredith, Ethan, Jay, and Liam. He is good and He is with the Weatherstones today. Amen!
This previous email was sent to the congregation on April 17, 2018
Our own Ethan Weatherstone is facing some tremendous health issues and doing it with bravery and an amazing attitude. He has been battling most of these issues his whole life but in the last few months things have deteriorated and the doctors have been working with him and his parents to get his name to the top of the liver transplant list as soon as possible. Prayer is an ongoing need. Also, as you can imagine, there are many medical costs involved with the process that is behind them as well as those they are facing ahead. Here is a link where you can donate money, if you are able, to help pay for the transplant process: https://cota.org/campaigns/ COTAforTeamEthanW This link will take you to a page that is facilitated by the Children’s Organ Transplant Association and all funds raised will only go toward funding the liver transplant process. Also, please pray about sending this link along to your contacts so that we can get Ethan help from the community at large. $150,000 is a lot of money and the more people that can donate a little bit, the more likely they will reach this goal.
MORE Good News
This good news on Ethan was sent to the congregation email list on May 18, 2018
“HE IS OUT OF SURGERY, EVERYTHING IS GREAT!!!!!! The doc said it was wonderful and that there were some meds that he didn’t even need.”
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